Should I go on with it?
Cadillac
 

Cadillac Forums | Help Us Help You | Advertise | Cadillac Parts | Cadillac News | Cadillac Classifieds / (Old System)

Cadillac Technical Archive | Cadillac Dealers | Cadillac Reviews | Cadillac Dealer Reviews | Cadillac Vendors

CadillacForums.com is the premier Cadillac Forum on the internet. Registered Users do not see the above ads.
+ Reply to Thread
Results 1 to 5 of 5
Community Lounge, Introductions and General Discussion Discussion, Should I go on with it? in General Discussion; Have this disease called Keratoconus. Basically it's a thinning of the cornea on the eye. I've been diagnosed with it ...
  1. #1
    Kingoftypos is offline Cadillac Owners Master
    Automobile(s): 06 CTS Sport/Luxury package
    Join Date
    Apr 2009
    Location
    Ledyard, CT
    Age
    35
    Posts
    7,501

    Should I go on with it?

    Have this disease called Keratoconus. Basically it's a thinning of the cornea on the eye. I've been diagnosed with it at age 15/16 and has my first corneal transplant at age 22. Before the transplant I was lucky enough to see the top 2 or 3 rows of an eye testing chart, with my left eye. After the transplant I was close to 20/25 with glasses.

    Now at the age of 35 my right eye has gotten worse. I was inspecting this and it frighten me as it's started off as my dominant eye. But lately I've been using my left for take pictures on my dslr camera.

    4 weeks ago I had an eye exam. My right eye had shown that it gotten worse since my last exam 2 years ago. I went back again 2 weeks later and the numbers were totally different from the 2 weeks pryer. Which is cause that my right eye is getting worse. Drastic changes with in a couple weeks is scary in it self.

    This was a new doctor to me as well. He mentioned me me this new procedure and I was very excited about it. Only one problem. It's not FDA approved yet. Thus I have to pay 100% out of pocket for it, $2,000.00. Which isn't a bad price. But, here are my concerns.

    Why isn't FDA approved yet? It appears it's been out for much longer than the typical 16 to 24 months the FDA takes. Though those numbers could be wrong too.

    Can I find out from the FDA if it's close to be approved?

    If yes, how long will it take until insurance companies allows it to be covered?

    I just don't want to spend the money only to have it approved the very next week. You know? Ha

    All as I know is that the doctor who I went to see in Fairfield, CT has done it thousands of times himself as well as one of the other doctors in his office. It's a 5 minute procedure, unlike others that is the same but takes 30 minutes.

    I want to get in contact with the doctor again to ask him a few more questions. Like what has his success rate have been. Typical age of patients, his long has it been since his first patient. And whatever questions you guys think I should ask would be helpful.

    Below is a link to what this procedure basically is and what my disease is.

    Any insight would be helpful.

    Thanks,
    KOT
    http://www.keratoconusinserts.com/?g...FS1eOgodHgoAEw

    ----------

    Oh since this procedure isn't approved by the FDA. Can I still put this on my tax return as a tax deductible like other surgeries?

    KOT

  2. Remove Advertisements
    CadillacForums.com
    Advertisements
     

  3. #2
    orconn's Avatar
    orconn is offline Cadillac Owners 10000+ Posts
    Automobile(s): Cadillac 95 STS, 02 SLS
    Join Date
    Oct 2007
    Location
    Midlothian, VA
    Age
    70
    Posts
    12,477

    Re: Should I go on with it?

    I would suggest that you contact the doctor in question him about the things that concern you. I would also go to FDA's web sight and search for information on the procedure in question ..... keep searching the sight until you come up with a reliable source of information on the procedure. I would also contact another opthomologist in your area to get a second opinion.

  4. #3
    talismandave's Avatar
    talismandave is offline Cadillac Owners Master
    Automobile(s): 1987 Brougham, 1974 Fleetwood Talisman, Volvo C70,
    Join Date
    Mar 2012
    Location
    Madison WI
    Age
    55
    Posts
    5,933

    Re: Should I go on with it?

    I would also try to talk to an Ophthalmology professor at a good university.

    Get their ideas on the procedure, who they think is the best in the field, and if they know of any universities in the county that are leaders in research in the disease.

    Whenever I have to do research, I always end by asking them for the names of two other people they know who I could call on the problem. It seems that the more you dig, you get closer to the top. I went through this twice when I was researching the Hep C cure I went through a few years ago, and ten years ago.
    Good luck.

  5. #4
    delerium75's Avatar
    delerium75 is offline Cadillac Owners Fanatic
    Automobile(s): 1991 STS, 1992 Fleetwood, 1987 Maxima wagon
    Join Date
    May 2008
    Location
    Bay City, MI
    Age
    39
    Posts
    200

    Re: Should I go on with it?

    Wow...it sounds like you're on the right path trying to research all you can. Don't be afraid to ask questions...in the end, you are your best advocate and while you can learn a lot from reading, it sounds like with this, you need to ask the docs themselves and don't stop asking until you know as much as they do. Good luck!

  6. #5
    Kingoftypos is offline Cadillac Owners Master
    Automobile(s): 06 CTS Sport/Luxury package
    Join Date
    Apr 2009
    Location
    Ledyard, CT
    Age
    35
    Posts
    7,501

    Re: Should I go on with it?

    Thank you all for the advice. I always feel weird to question one's ability. But hardly ask other people in the field on what they think. I'll look into that. I also hope that the FDA will be able to give me an answer on their approval or non-approval and they're reasoning.

    We'll shall see.

    KOT

Quick Reply Quick Reply

Register Now

Please enter the name by which you would like to log-in and be known on this site.
If you do not want to register, fill this field only and the name will be used as user name for your post.

Please enter a password for your user account. Note that passwords are case-sensitive.

Please enter a valid email address for yourself.

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.



Bookmarks

Cadillac Posting Rules

  • You may post new threads
  • You may post replies
  • You may not post attachments
  • You may not edit your posts
Read about Lincoln | Buick | Kia Forte Forum
Need products for your Cadillac? Check out your options at the links below:

custom floor mats | Cadillac Chrome and Black Chrome Wheels | window tinting